Changing current Emergency Medical Protocols for those with “special medical needs”. Our goals are prompt and proper emergency treatment for all with RARE DISEASE & SPECIAL MEDICAL NEEDS! Also specialized education for paramedics along with emergency preparedness education for affected families. Facebook Page Link
6 thoughts on “Changing current Emergency Medical Protocols for those with “special medical needs”.”
I have had Adrenal Insufficiency for 25 yrs. but for the grace of God. I have had too many close calls that should have killed me. Iam also a retired nurse of 30 yrs.
I knew nothing about AI before I acquired it and neither did the Dr’s. and co-worker’s. Only what they may have read here and there. Not enough to do us justice. Please help the first responded. Thank you.
Marla, you will be happy to know we are working on a Nationwide Paramedic Education Campaign for rare disease/chronic illness too. Yes, we realize there’s so many, but with every session that is taught that is one more or several lives saved. We will start with the most common and keep working. Adrenal Insufficiency and Bleeding Disorders happen to be the two highest populations that are protected by the work we are doing.
It’s a pity you don’t have a donate button! I’d certainly donate to
this brilliant blog! I suppose for now i’ll settle for book-marking and adding your RSS feed to my Google account.
I look forward to new updates and will talk about this site with my Facebook group.
You can tell that our heart is in the work, when we forget a Donate option right on the webpage. lol However, it is now added and thank you so much.
This is fantastic!! Definitely a much needed educational service!! I have had to call the on-call hematologist and put the emergency room doctor on my cell phone with them….. in the emergency room of the hospital where our Hemophilia Treament Center is located. 1/2 hours after being brought in by ambulance with symptoms of a head injury my severe Hemo A son had not been factored……He could have died 4 floors from our HTC and his factor was literally sitting on his lap!!!!
Charity, I am so sorry this happened and these stories are all too common. But, we will continue our fight until everyone is protected.