Mission: To raise awareness to the current gap in Emergency Treatment for all with special medical needs, to change these currently outdated treatment protocols, help educate emergency service personnel and educate affected families in proper emergency planning and protection.
Vision: Our vision is to create change across the United States to assure prompt and proper care for the over 28 million Americans affected by conditions that require specialized emergency care. Emergency care outside of “standing protocols” which causes delays in treatment that results in constant fear, additional pain and suffering, long-term damage and even death for the patient.
This vision is being achieved and is continuing to grow across the US under our existing efforts which include:
*Volunteering, creating relationships and attending conferences with national and state EMS associations to be the voice for the patients living with rare and chronic conditions to their specialized care needs.
*Creating “Disease Specific Treatment Guidelines” with specialized education for EMS and ED personnel by bringing together the key stakeholders including: medical specialists and advocacy organizations with nationally recognized EMS & Emergency Physicians, other key EMS personnel and consultants plus accredited educational development teams.
*Working with other nonprofit organizations in the rare disease and chronic illness space to assure proper Emergency Preparedness education and tools are available to patients and their families.
*Continue to use Missouri as a model of success through legislative change, scope of practice updates, education and awareness all leading to a vast improvement of care